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What have YOU learned through the years as a parent of a child with Down syndrome ?

The day my son was born is such an indescribable display of bright lights and dark bleakness that there is no word strong enough to describe it. But there is a word to describe the months and years that came after.

Over the years, I have learned so many things. I have met; I have inspired; I have been inspired; I have cried; I have been mad; and I have cherished, with everything that I possess in me, my son, who has Down syndrome. 

When we first started this journey together, there was nothing that could have prepared me for the heartache or the fear, that would take hold of me when the doctor first said "Your son has Down syndrome"....But, neither could the speaking of those words ever prepare me for the beauty, the joy, or the overwhelming love that I feel for my child.

We reached out to our followers and asked them "What have YOU learned through the years as a parent of a child with Down syndrome?" Here is what they had to say:

"Patience, understanding, unconditional love,how to advocate, to never accept no, to push the limits of expectations. These are only a few of the things I have learned from my 17 year old with Down syndrome." ~ Sheila B.
"I have learned how to love so deeply. How strong I can be and how protective I have become. I have learned a smile from my daughter can heal my heart and soul. I know the small things matter and we are not all perfect. She has made me a better person." ~ Deanna L. 
"The power of positive thoughts work wonders! My daughter has shown not just myself & our family but doctors and nurses not to put limitations on her. She has blown past every milestone and goal 6-9 months ahead of schedule. At almost 3 years old she can keep up with her twin without missing a beat. I couldn’t be prouder of her even with all her medical issues. She shows more strength than a 100 people combined." ~ Casey M.
"Perspective - having 2 kids with Down syndrome has taught me what's important in life." ~ Lorraine B.

"Never ever underestimate their abilities and your strength." ~ Tammy P.

"To let your inner light shine through in a smile with your eyes! My Johnny boy just lit up a room when he walked into it. He made so many friends and he made friends instantly. He passed away 3 years ago and I never stop missing him. He was a bright light while he was with us and made the world a better place while he was here. He taught me more than I could have ever taught him." Marion S.



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  • I was scared when I was told my son had down syndrome . But I made him a promise no matter what we would make it. Now 20 years later he is my greatest joy . He is amazing strong and smart and has the cutest smile. Can not see my life without him in it

    Becky on

  • I have learned patience, strength. When my daughter Ashley was diagnosed with DS I was scared I had no idea of what was in store for me. I was scared for her for me and worry about how society will welcome her. Ashley is now 14 years a freshman in hs and I have to say I would not change one bit of my journey. I’m still learning with her and embracing every new adventure we come across.

    Rosa on

  • My daughter Marlene has taught me patients and how to love she made me a better person she is my gift from God ??❤️

    Annette Cordova -webb on

  • My daughter, 44 years old…she’s beautiful in everyway. If the whole world could love like her, it truly would be heaven on earth. People often ask me, “why is she so normal”….I believe, sending her through the school system,making her feel like she is no difffrent. " She is loved beyond measure!!!

    Maureen on

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